By means of Our Mind Financial institution, the nonprofit she based, Ms. Morris inspired treating extra than simply the tumor.
“Whenever you’re all of a sudden informed that you’ve got a situation that’s thought of terminal,” she stated on the podcast the Human Guinea Pig Mission in 2019, “the one factor you desperately want is psychological help, and it’s not there.”
She additionally wished to make sure that sufferers had entry to and funding for second opinions, in order that those that have been informed “nothing might be completed” by one physician would possibly hunt down a extra aggressive method in the event that they selected. She herself pursued a number of novel approaches, her husband stated, together with an experimental remedy that one in every of her medical doctors had advised, involving an injection of herpes virus into the tumor within the hope of stimulating a defensive response.
“Even when I don’t know precisely how specific remedies would possibly work — and no one actually does — it form of is smart to attempt to block as many pathways to the most cancers as attainable,” Ms. Morris defined on the podcast.
One other purpose was making it simpler for glioblastoma sufferers to enroll in medical trials of medicine and therapies. The method of moving into such trials might be cumbersome and irritating to sufferers with a restricted life expectancy. And since glioblastoma is a fancy illness wherein every tumor has totally different traits, Ms. Morris and her group developed an app that sufferers can use to report signs and share data with each other and with medical professionals — as an assist to understanding the illness higher.
“Affected person symptom knowledge is a largely untapped pool of knowledge that may inform researchers, to allow them to higher design remedies,” Ms. Morris stated throughout a 2019 panel dialogue on patient-centric remedies. “Involving sufferers in that course of has the additional benefit of offering folks with the illness to really feel they’re managing the illness, and never the opposite approach ’spherical.”
Jessica Jane Morris was born on July 22, 1963, in Greenwich, close to London. Her father, Invoice, was an architect, and her mom, Elizabeth (Villar) Morris, is an artist.